The Pandemic is still raging. The government is still not helping PWME and Long COVID patients. Time to advocate again!

Below are 4 easy instructions for advocating for ME & Long COVID health equality if you want to skip ahead.

If you want to act but you don’t have the energy for all this please reach out to me at or on FB messenger and I’ll have someone provide you simplified personal instructions. Your voice is as important as anyone else’s… it is more important quite frankly… we can help you be heard within your energy limits.

I feel this may truly be the best opportunity we’ll ever have for to strike towards ME health equality and do something meaningful for Long COVID patients. We must catch Congress’ attention before the moment passes.

So bear with me… It is time to advocate again! We need your help to tell our members of Congress to co-sponsor the COVID-19 Longhauler’s Act and COVID-19 and Pandemic Response Centers of Excellence Act. There aren’t yet enough supporters in Congress and the Colorado Members of Congress have not yet been very supportive (exception: Rep. Neguse).

So please, even if you have contacted Congress already about these acts, do what you can now within your safe health limits.


STEP 1: Call and email (or if you can only email then that’s fine) Senators Bennet and Hickenlooper using these instructions.

STEP 2: Find out who your Representative is if you don’t already know:

STEP 3: Call and email (or if you can only email then that’s fine) your representative using the appropriate file below.

STEP 4: Ask a couple of your friends or contacts to do the same. Seriously, we really need you to do this. We may be small as far as disease advocacy groups go but with your help we can be as mighty as we need and deserve to be.

Thank you so much for all the big and little things you do,


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