Your Doctors as ME Allies

Remarks at the Denver Millions Missing Event for ME, May 11, 2019
By Lila Rosenthal, MD

Dr. Rosenthal (center) at MM2019

Thank you for the warm welcome and kind introduction. It’s an honor to be here with you today to raise our voices to raise awareness about ME. It was difficult for me to figure out what I could say to you long-suffering patients and caregivers, who have been marginalized and at times dismissed by my colleagues. If I’m honest, if you would have seen me before I became “educated”, I might have treated you without the respect and validation you deserve. Today I want to tell you, from the bottom of my heart, that I am sorry on behalf of myself and my peers.

Most of what I know about ME I have learned from my patients. And so in light of today’s theme, Finding your Allies, I want to say some words about how you can best educate your practitioners to be able to get the best possible care while we wait for new data and new treatments to emerge.

Find your Allies: Try not to see busy, harried, uninformed doctors as the enemy.

Do You have a #MillionsMissing Shirt?

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If you come to the Visibility Action on Saturday May 11th at the State Capitol, you will want to wear one of these.

If you are doing your own Action at home, then you will definitely want one.

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