What To Expect At #MILLIONSMISSING DENVER 2019 ?

WHEN – Saturday May 11, 1:00 to 4:00 pmcapitol decor

WHERE – Colorado State Capitol, 200 E. Colfax Ave, Denver

WHY – We are part of a global campaign (At least 93 events will be held during this week in USA, Canada, Mexico, Europe, UK, Australia, Japan and South Africa) for health equality for Myalgic Encephalomyelitis. These events  bring attention to the need for huge increases in investment in medical research and medical training to treat ME. Continue reading

#MillionsMissing Denver 2019

#MillionsMissing is a global day of action for health equality for people with Myalgic Encephalomyelitis (sometimes called chronic fatigue syndromeME or ME/cfs).

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We bring attention to the Millions across the globe who are Missing from their careers, their hobbies, their social networks and their former lives due to this extremely debilitating disease.

Last year was MEAction’s largest global protest ever with 100 cities around the world demonstrating, and even more participating virtually. This year will be even larger as  #MillionsMissing events will take place around the world over the course of an entire week from Sunday, May 5 to Sunday, May 12.

MM Denver 2019 collage crop v2In Denver our event is on Saturday May 11th.

We’ll have:

  • Guest Speakers
  • Live Music
  • Personal Stories from our Members
  • A Call to Action 

You can:

  • Meet others in the ME community
  • Share stories and advice with other Caregivers and Allies
  • Let Colorado know that ME exists in all our neighborhoods
  • Learn to make your voice heard in Congress to  support #pwME

RSVP on Facebook  or at MEAction.

Please consider making a donation to support us in our advocacy work for Colorado’s thousands of people with ME.

We hope to see you there!

 

UNREST in Denver March 2nd

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Update  as/of 1:25 pm Thursday March 1:

Unrest is still on for tomorrow but stay tuned for any last minute weather updates.

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MEAction of Colorado is proud to present a screening of Unrest, a Sundance award-winning film by Jennifer Brea, with a panel discussion. Invite your friends, family, and doctors to join us!

The event will be held at 1:30 pm on March 2,2019 at the Co-Op at 1st at 5045 W 1st Ave, Denver, CO 80219-1005. Doors open at 1:00. Refreshments will be served after. Come early to check out the indoor farmer’s market! Continue reading

Representing ME at the Womxn’s March

Kristen Aguirre from 9News Denver did a very nice segment on MEAction Colorado’s planned participation in the Womxn’s March providing some visibility that is greatly appreciated by those whose lives are so badly impacted by this ‘invisible disability’.

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Group photo courtesy Tom Strobel

Our small but mighty team grew a little bigger with the addition of some last minute volunteers who braved the below freezing weather and helped represent those fighting ME who can’t physically make it through the march. Continue reading

Hey, we are Congressional Lobbyists!

Lobbyists at Gardners office 300x300Here’s the MEActionCO team* in front of Senator Cory Gardner’s office building on May 29,2018. We had a positive meeting with his Regional Coordinator, Steven Emmen. We are encouraging Sen. Gardner to co-sponsor Senate Resolution 508 (SR508) to raise awareness of Myalgic Encephalomyelitis.

In summary, SR508 

  • supports the goals of ME/CFS International Awareness Day and
  • recognizes and affirms the commitment of the United States to discovering the cause of, and a cure for ME/CFS and
    improving the availability and quality of medical care for individuals with ME/CFS.

Continue reading

May 12th Backup Plan – Go Virtual

We would love as many as possible to attend our #MillionsMissing Visibility Action on May 12th. But your health comes first. If you don’t know if you will be well enough to attend the public event, a few days ahead of time prepare an individual event in your home. Put on your MEAction shirt and make up a sign and have a picture or short video taken of yourself.

Then on May 12th if you’re not feeling well enough to go to the public event you can post your picture/video to Facebook and/or Twitter or Instagram. Use the hashtag #MillionsMissing so the MEAction Network folks can find and count it. Every event big or small helps build our community.  Click here for more on Individual/Virtual events.

 

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