We are thrilled to share this Letter to the HHS that Sen. Bennet, and Reps. DeGette, Perlmutter, Neguse and Crow sent to the HHS regarding the CFSAC (CFS Advisory Committee). The letter demands answers after the committee was disbanded. Please see below for how to thank them on social media.
Last year, over 40 members of Congress including 2 from Colorado, signed a letter to the HHS. Not content to just do that, the staff of Sen. Bennet worked with us to craft a Colorado-specific letter which was signed by 11 of us from MEAction CO plus Diane Bean from the Solve ME/CFS Initiative Board of Directors. Sen. Bennet’s office added a cover letter and contacted all Colorado Members of Congress to come up with support from 5 of them.
This comes as a direct result of your support for our advocacy. All your emails and calls truly made a difference in catching Congressional attention in a big way.
We accomplished more than just 5 more voices in support: now every single CO Member of Congress is aware of our concerns!
Regardless of what happens with HHS and the CFSAC, when there is legislation introduced before Congress, we can count on strong support from most of our delegation, and awareness from them all.
We are deeply grateful to the four representatives who signed and especially to Sen. Bennet and his health staff for their extreme dedication and for going the extra mile for us.
Please thank our congressional supporters on Social Media. Personalize or use a minimal text for the Reps: “Thank you for supporting people with ME/CFS by signing the letter to HHS regarding the CFSAC.” And for Sen. Bennet: “Thank you for supporting people with ME/CFS by writing a cover letter to the HHS regarding the CFSAC and by contacting the rest of Colorado’s Members of Congress. I deeply appreciate your support.”
Here are their contacts on Facebook and Twitter:
facebook.com/senbennetco/
facebook.com/degette/
facebook.com/RepJoeNeguse/
facebook.com/RepPerlmutter/
facebook.com/RepJasonCrow/
@SenatorBennet
@RepDianaDeGette
@RepJoeNeguse
@RepPerlmutter
@RepJasonCrow
MEAction Colorado 
Hi ME colorado – I live near Boulder and need a competent ME doctor closest to my area that takes Medicaid. I’ve been debilitated for over two years now. Used to be a nurse practitioner. Any suggestions would be greatly welcome. I couldn’t find anyone on Google.
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Hello, here are doctors that are recommended for people with ME in the area. I don’t know if they take medicaid or not though, but you can check with theem. None exactly in Boulder but hopefully some are close enough. Good luck and if you want further information or to discuss more, please feel free to email me at john.kelty@meaction.net
* Immuno Health Centers at https://www.immunoelongmont.com/contact are highly recommended, esp. the one in Longmont center, and Dr. Melamed is very highly recommended by many people. I do not think he is taking new patients though. But regardless of getting Melamed himself these centers are themselves still recommended.
* Dr Scott B Strader, UCHealth Neuroglogy Clinic, Neurologist: 2315 E Harmony Rd Suite 110, Fort Collins, CO 80528, (970) 482-4373
* Dr. Billica; Tri-Life Health, MD and naturopath. 2362 E Prospect Rd, Fort Collins, CO 80525; (970) 495-0999
* Dr. Stephen Henke, Henke Health, functional medicine, henkehealth@gmail.com 970-482-0549. 1304 S. College Ave, Suite 5, Fort Collins, CO 80524
* Drs. Monique and Dayna Larson, TCM Clinic, Traditional Chinese. 700 West Mountain Ave Fort Collins CO 80521. (970) 416-0444
* Inger Griffin LAc, Wisdom Ways, Acupuncture. 363 W Drake Rd #1, Fort Collins, CO 80526, (970) 227-3077
* Krista Plate FNP-C. Banner Health Clinic, 222 Johnstown Center Dr. Johnstown , Co 970-587-4974
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